Join us for our annual fall picnic! Meet other people who can understand and empathize living with a connective tissue disorder. Share resources and enjoy great food. More information will be added as the date approaches.

Be apart of Zebragiving! Come and enjoy a delightful gathering with zebras, where you can share a meal and good conversation.

Meet us to get support from local people and share resources.

Join us for Rare Disease Day February 28th to show you are RARE! More details to come. https://www.rarediseaseday.org/